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Title :Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan
Authors :Takezawa, Yasuko
Kato, Kazuto
Oota, Hiroki
Caulfield, Timothy
Fujimoto, Akihiro
Honda, Shunwa
Kamatani, Naoyuki
Kawamura, Shoji
Kawashima, Kohei
Kimura, Ryosuke
Matsumae, Hiromi
Saito, Ayako
Savage, Patrick E.
Seguchi, Noriko
Shimizu, Keiko
Terao, Satoshi
Yamaguchi-Kabata, Yumi
Yasukouchi, Akira
Yoneda, Minoru
Tokunaga, Katsushi
Issue Date :23-Apr-2014
Abstract :Background:A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, social sciences, medical sciences, and genetics to begin an ongoing discussion of the social and ethical issues associated with population descriptors. Discussion:Through the interdisciplinary dialogue, we confirmed that the issue of race, ethnicity and genetic research has not been extensively discussed in certain Asian communities and other regions. We have found, for example, the continued use of the problematic term, “Mongoloid” or continental terms such as “European,” “African,” and “Asian,” as population descriptors in genetic studies. We, therefore, introduce guidelines for reporting human genetic studies aimed at scientists and researchers in these regions. Conclusion:We need to anticipate the various potential social and ethical problems entailed in population descriptors. Scientists have a social responsibility to convey their research findings outside of their communities as accurately as possible, and to consider how the public may perceive and respond to the descriptors that appear in research papers and media articles.
URL :https://doi.org/10.1186/1472-6939-15-33
Type Local :雑誌掲載論文
ISSN :1472-6939
Publisher :Springer Nature
URI :http://hdl.handle.net/20.500.12000/47010
Citation :BMC Medical Ethics Vol.15
Appears in Collections:Peer-reviewed Journal Articles (Faculty of Medicine)

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